About Cyster Stories

PCOS. What does it mean? Who does it affect? How does one know if they have it?

Cyster Stories aims to educate others about what PCOS is by sharing the stories of those affected by PCOS. 

Come back to this page all throughout November to learn more about PCOS and those living with the condition.



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Kendall's Story

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           Hi, my name is Kendall and I am a 21-year-old junior studying Social Work at the University of North Carolina at Greensboro. I am one of many other women who have been diagnosed with PCOS. I was ‘officially’ diagnosed during my sophomore year of high school. My cycles were never normal. I would skip a cycle for a month or two and then suddenly get one again on schedule.  I was given an ultrasound where they noticed a few small cysts on my ovaries. Nothing on the ultrasound was too terribly concerning to the doctor. From there I got set up with an endocrinologist. The first time I went I had bloodwork done. On top of my PCOS, I was diagnosed with Hypothyroidism. During my first endocrinologist visit, I was prescribed a couple of medications. Metformin and Spironolactone for my PCOS and Levothyroxine for my Hypothyroidism. I also regularly take Vitamin D and birth control to regulate my periods. My ‘conditions’ are very well managed by my slew of doctors. When it comes to PCOS
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Destiny's Story

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          My name is Destiny, and I am the creator of Cyster Stories. I was 17, and in high school when I found out, I had PCOS. I was having extremely irregular and missed periods for a couple years at this point. The year I found out I went from February through June without having a period, and in July when I finally started having my period again it lasted two weeks straight. Obviously, this isn't normal so I started doing research on what causes irregular periods like that. At the same time, I was having problems with my pancreas and having bad headaches.       When I brought up PCOS to my endocrinologist, he looked at me, asked me what that was, and then had to google search it himself. This was the first red flag of many for me with this doctor. After many visits with this doctor, never getting a straight answer about anything that was wrong with me, and many ableist comments later, I switched doctors. My new doctor took one look at all my symptoms and medical history and kn
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Thank you for reading the Cyster Stories, and helping me out with my project!  Here is the Post-Survey to take. You don't have to have taken the Pre-Survey to take this one.  https://docs.google.com/forms/d/e/1FAIpQLSeGuROX2oF4_sTukF2YcGg-7kFxS8Cb-H1unXjJlOzKnW5UtA/viewform?usp=sf_link All information from these surveys helps me out with my project and only takes about 1-5 minutes at most to take.  THANK YOU!!!
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